Heard back from the endocrinologist's nurse today. L had a bone scan of her hand last month to see how aged her bones were compared to her. At the time, L was 12.5 years old and her scan showed her bones being 14.3 years old.
I also got some serious validation about not giving her the growth hormone years ago. The nurse said that Logan's petite size was the result of her radiation and disease. Kids who have medulloblastoma, as Logan did, have shortened spine stature/growth. So basically, the gh would have done not a thing for her. Stick that in your pipe Dr.M!
Just because a child has had a life threatening disease and numerous surgeries and treatments, doesn't mean every parent is quick to adminster tons more meds into our them.
Alas, we are still going to see him in a week or so for the talk on giving her the gh for metabolic/adult reasons. Not sure what it is all about and I doubt we will give it to her but I am going to keep my ears open and hear both sides before I make a decision and talk with her about it.
Friday, April 4, 2008
Another endo post
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3 comments:
Hope you get the answers you are looking for {HUGS}
What tough decisions you've had to make. I know you'll make the right one. You're such a great Mom!!!
that's gotta be tough since I know you and her want her to be as "normal" as possible going into adulthood. I hope you don't have too tough of a time making the decisions
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