Quick update

Sorry it has been a while. Been busy here. Emma saw the specialist yesterday and it looks like we will be on our way to Boston as soon as they can fit us in. We go back to the specialist, here in Maine, in 2 weeks for some scans/bloodwork, and to see how she is handling the meds they gave her.

I know that her diagnosis is certainly not the worst thing in the world but it is quite devastating for us. It has made her very immobile in the past months and depressed, along with the undying insomnia.

The scale said she has put on 11 pounds since it all began. We will have to shop for new clothes this week. Her pants are skin tight! She almost cried when the doctor said there was no cure and that she will have to live with it for the rest of her life.

I hope we can get some answers soon!